Invisibility, stigma and workplace support: Experiences of individuals with chronic disorders

Abstract

Orientation: Individuals with chronic disorders such as systemic lupus erythematosus (SLE) face challenges in disclosing their condition at work due to symptom invisibility and stigma. Managers play a crucial role in managing employees as stakeholders and shaping workplace culture and inclusivity.

Research purpose: This study explores how workplace culture and support systems influence disclosure decisions among individuals with SLE, focusing on the role of managers in shaping these experiences.

Motivation for the study: Limited research exists on the disclosure of invisible illnesses like SLE in professional settings. This study seeks to understand how stigma and inadequate support lead employees to conceal their condition.

Research approach/design and method: Using document analysis and semi-structured interviews with participants from various industries in South Africa, the research explores the interplay between workplace culture, support systems and disclosure decisions.

Main findings: Findings show that the invisibility and stigma of SLE, challenges in recognising it as a disability, and insufficient workplace support contribute to concealment. Managers often perpetuate unsafe spaces for disclosure.

Practical/managerial implications: Organisations must address the systemic exclusion and stigma faced by employees with chronic illnesses. Enhancing training and support for managers is critical to fostering inclusive workplaces and safe disclosure environments.

Contribution/value-add: By exploring the strategies individuals with SLE use to navigate workplace challenges, the study provides insights into the relationship between chronic illness, stigma and workplace inclusivity, enriching the broader discourse on disability in professional contexts.